The MyData 2018 conference took place in Helsinki on August 29-31. The core idea behind the MyData movement is that we, you and I, should have an easy way to see where data about us goes, specify who can use it, and alter these decisions over time. Videos and slides are now being posted online. We selected three of them:
Marju Lauristin – Human world vs digital world? [25:39]
What is the main difference between digital and human world? We have to think about AI vs human memory, knowledge, culture, ethics, education.
Marju Lauristin is a professor of social communication at Tartu University and a former MEP (2014-2017). She acted in the European parliament as a shadow-rapporteur on the GDPR and rapporteur on e-privacy regulation. She is currently teaching political culture and analysis of public communication in the Institute for Social Studies in University of Tartu. Her research area is social transformations in the digital age.
Dawn Nafus – N of Many Ones [25:58]
How can we empower ourselves around our personal data – and potentially contribute to a greater good?
Dawn Nafus is a senior research scientist at Intel Labs, where she conducts anthropological research to inform new product development and strategy. Her research interest include cultures of quantification, health and environmental sensing, and digital methods. She is the editor of Quantified: Biosensing Technologies in Everyday Life (MIT Press, 2016), co-author of Self Tracking (MIT Press 2016) and co-editor of Ethnography for a Data-Saturated World (Manchester University Press, 2018).
Fabrizio Leoni – eIDAS and Self-Sovereign Identity [19:17]
Self Sovereign Identity models can be interoperable with eIDAS regulated Trust Services. In his talk, Fabrizio explores interoperability scenarios and actual proof of concepts.
Fabrizio Leoni is head of product innovation at InfoCert (a leading company in the field of Trusted Certification Solutions that also provides SPID – the solution that allows the Italian citizens to access all online services of the Public Administration with a single Digital Identity). Fabrizio is responsible for new products development and putting product concepts into the marketplace.
eIDAS (electronic IDentification, Authentication and trust Services) is an EU regulation on/a set of standards for electronic identification and trust services for electronic transactions in the European Single Market.
In this context, please consult the very interesting and thought provoking interview with Helen Nissenbaum, a philosopher specialised in digital privacy, that was published in the Harvard Business Review. Nissenbaum, who earned her PhD from Stanford, is a professor of information science at Cornell Tech, New York City, where she focuses on the intersection of politics, ethics, and values in technology and digital media.
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Experientia is proud to have been a key participant at the Roche Innovation Summit, held at Roche headquarters in Basel Switzerland on 19 June 2018. Themed “Transforming the Healthcare Experience Together”, the summit aimed to galvanize the Roche community around the future transformation of healthcare and diagnostics. With 800 attendees from Roche and Genentech global […]
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